This is My story about living with Myoclonus Dystonia. (also called Myoclonic Dystonia) I hope to educate people and help others out there struggling with some form of Dystonia Particularly the very rare types. I want them to know they are not alone. Building awareness and community. I also want to Help friends and family better understand my thoughts and emotions behind this.
Tuesday, December 1, 2015
Really it could be either.. or both.
Today has been trying to say the least but I have stayed home. everything from my neck to knees is constricting. My heart rate has been up to 137 (this is actually pretty good because its been in the 180's before) and my O2 has been down lowest at 91. It is about 96-97 now though. My pain level is higher then the smiley face scale goes, even with 4 doeses of Valium. If I can make it through it this time without the ER then that means less drugs, and less drugs means better for me. It also means I don't have to go sit in an er for 12 to 24 hours.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment