Thursday, January 7, 2016

Thank you 2016!!

Okay so 2015 was NOT a good year for me on so many levels.

2016 didnt start off with a bang either but It is slowly making a turn around, Today was a big thing!!!

My appeal for the Xyrem GOT APPROVED!! the co pay isn't too bad. but between channel 5 and my go fund me and just saving money I have about 1000 For medical stuff so I wont have to worry.     I can now start the drug trial. This is huge as is can potentially stop the Myoclonic jerking or at least slow it down. I haven't has a storm since the start Of all the benzodizapines and I am getting used to the side effects of them.

So here is to crossing our fingers to new beginnings!! :)