The Xyrem (GHB) came in the mail last week.
I have gone through a roller coaster of emotions because its exciting and terrifying all at once. I am On anti-depressants that cannot be taken at the same time as the Xyrem. SO... that is the most terrifying part. Mood stabilizers have been a life saver for me for the past 7 years. I worry.. And Of course when I worry my OCD kicks in and then I can think of NOTHING but disaster :\ Heh. Last Friday the nurse called and said that we would probably start the trial on the doctors hospital days (Tuesdays and Fridays) so she thought we would be starting this Friday. The nurse I was speaking to was the one I always talk to but she said she wouldn't be in this week that I needed to call is other nurse if I didn't hear something on Monday, and I of course did not. So I called today to find out what the plan was and the current nurse looked on his schedule and I am not in the hospital schedule for Friday. She didn't even have any notes about the drug trial. I was really annoyed this afternoon because it is these moments when I feel like because I am one of so few that the doctors really just don't follow close enough attention because they don't know what to do. It feels like really bad practice to not be following the patient you are putting through a drug trial more closely and following up with her when she is starting and have some details at least. The drug companys nurse was the one that told me I would have to stop my anti depressant because of interaction. My doctor and nurse were completely Unaware of it until I brought it up. So again I state that terrified part.. this is why. I know I am a guinea pig... but sometimes it would really be nice if they didn't treat me like one. Maybe if they at least pretended to know what was going on I would feel a little more comfortable. I have done a TON of research on my own, google is amazing. So I kind of know what to expect, but it is all a guessing game.
