This is My story about living with Myoclonus Dystonia. (also called Myoclonic Dystonia) I hope to educate people and help others out there struggling with some form of Dystonia Particularly the very rare types. I want them to know they are not alone. Building awareness and community. I also want to Help friends and family better understand my thoughts and emotions behind this.
Thursday, December 10, 2015
I will take back my life!!
So I need to start with this... THANK YOU! A select few of you have been there fighting right along with me you share it and your support me and check in. Some of you drive me around some of you surprise me in ways I just cant thank you enough for. That's to those people I know helping me fight and to those that I don't know thank you for your for being so kind. In my life I WILL MAKE SURE that this Disorder is KNOWN. There will be Awareness even if I have to keep flooding your social media until everyone shares it. (or de-friends me) Today I woke up and I didn't have much fight, but as I got up and saw the things people were saying, as my gf was sending me anything she could find in research. I realized I get through whatever it is with the people that have enough love to carry me through the roughest days.
The medication is Making me sick, well that's when I am awake. It is stealing my independence, but its just temporary. I still got a lot of fight left in me. The insurance of course denied the trial med. The trail coordinators are appealing it. So that's good. If its denied again then we will apply for another program that covers 95% of the medication for the first year. this is just a trail medication they have no idea if it will work and it will only calm the myoclonus. ANY help is better than none though. Starting small is better then not starting at all. We are still fighting for Mayo Clinic. YOU CAN HELP. Here is how - SHARE MY STORY. on twitter on facebook on instagram. tell it to your friends, your family, tell them to share my story. I want my story to be viral. I wan't people to know while my case is EXTREMELY rare helping me could help Many. A big thank you again to everyone that has done something this far every gesture no matter how big or small is a giant leap for me. I am blessed and I continue to believe I am blessed because of the people I have been given in my life to see me though the hard times. One day not far off I will be well enough to be fostering tiny babies and teaching them how to be strong.. but for now, I have my battle to conquer. Watch out world... :) "I may only have one match but I can make an explosion" Also this is something to note. Though I prefer not to be moved because I am afraid of falling. People describe it as being similar to a grand mal seizure except that you are awake and aware.
I am Shelley from Los Angeles,California, I want to testify on how i got cured from cervical dystonia, I have suffered from cervical dystonia since the year 2011 with so mush pain,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the constant muscle contractions and pain , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including dystonia, at first i doubted if it we be able to cure me, but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from dystonia just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from dystonia you can contact him through his email on drwilliams098675@gmail.com for help.
Dear FRIENDS, now i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old, And i live with my husband in Belgium, but I am from UK. I was diagnosed in 2012 with cervical dystonia. Doctors told me this condition was forever. I know how you feel and what you are going through, I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to get in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.
I am Shelley from Los Angeles,California, I want to testify on how i got cured from cervical dystonia, I have suffered from cervical dystonia since the year 2011 with so mush pain,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the constant muscle contractions and pain , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including dystonia, at first i doubted if it we be able to cure me, but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from dystonia just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from dystonia you can contact him through his email on drwilliams098675@gmail.com for help.
ReplyDeleteDear FRIENDS,
ReplyDeletenow i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old,
And i live with my husband in Belgium, but I am from UK. I was diagnosed in 2012 with cervical dystonia. Doctors told me this condition was forever. I know how you feel and what you are going through, I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to get in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.